BetaHCF Case Studies Library is in beta. We're still adding campaigns and fixing things.
HCF Case Studies Library

← All campaigns · Open in the library

World Narcolepsy Day

An annual awareness day on 22 September, founded in 2019 by narcolepsy patient groups on six continents, including Narcolepsy UK and Project Sleep. Groups ask people to share stories and graphics under #WorldNarcolepsyDay, hold meet-ups and press work, and push for faster diagnosis and less stigma.

Years
2019–now
Country
United KingdomUnited States
Topic
Sleep
Asks people to
RecognizeReduce stigmaSeek help
Strategy
Stigma reductionTestimonialUser generated content
Channel
EventsSocial (organic)Website
Audience
CliniciansGeneral public
General public, people with narcolepsy and families, sleep clinicians

Evidence

NoneUnknown

Sponsor (who paid)

  • Narcolepsy UK NGO
  • Project Sleep NGO, co-leader (US)
  • Patient advocacy organisations on six continents NGO

Credits (who made it)

Not recorded yet.

Related campaigns

Sources

  1. World Narcolepsy Day (Narcolepsy UK) sponsor
  2. Narcolepsy UK partners with organisations across six continents to create inaugural World Narcolepsy Day on September 22nd 2019 sponsor · 2019
  3. Avadel: Narcolepsy Disrupts and World Narcolepsy Day (Sleep Review) news · 2021

Research notes

Created 2026-10-24 by an AI research pass for #103 (G3); not reviewed by a person. The 2019 founding comes from Narcolepsy UK page titles in search results; the founding press release itself was not opened. Sleep Review (2021) says 28 patient groups founded it; a 2026 Swedish release in search results says 32 groups now take part. Country list gives only the two lead groups' countries. To verify: 2019 start; 22 September date; six continents.

Record cases/world-narcolepsy-day.json, updated 2026-10-24· Link to this campaign